Tuesday, January 14, 2014

Utah - day 1 and 2!! (Surgery tomorrow)

We are in Utah, flight was good, albeit long with an almost 2 year old on my lap. 

At Detroit airport

On my lap - he's a big lap baby!


Little guy worked his way to the ground and took a nap on the floor of the airplane!


My sweet friend Amanda picked me up at the airport and drove us to our appointments yesterday. We then had dinner with her family. So blessed by this crew!

We are seeing an insane number of doctors...here is the line up..

ENT - suggested ear tubes. He also showed me that I can visually see my sons nasal cavity if he opens his mouth wide enough. I also got to see how lunch is regularly left in his nasal cavity due to the cleft palate.

Plastic surgeon - suggested we close Luke's lip, fix his nose a little, and close his soft palate. He said Luke will only need the prosthesis (fake plastic roof of his mouth) for 12m. The hope is that his natural bone grows behind the prosthesis over the next year.

Orthodontist - fit Luke for the prosthesis 

Speech therapist - told us to get started ASAP when we are home with speech using both medical insurance and our school system.

pediatric dentist - looked at one if his teeth that may need a filing.

Neurosurgery - consult for genetic markers given the cleft birth defect

We are on for surgery tomorrow morning at 8 mountain time. I am sad to see his adorable cleft go but happy he will be able to communicate better soon.

Please pray for skillful surgeons and a peaceful recovery!!!


4 comments:

Glena Lilley said...

Prayers for you both. Just as hard on mommy watching it all, I know. Keep him close, momma bear!

Glena Lilley said...

Prayers for you both. Just as hard on mommy watching it all, I know. Keep him close, momma bear!

Jan en Terry said...

all our thumbs up for Luke!

dsantucci said...

Good luck, you have a full plate. Will pray for the best outcome.